10 Resources for Persons with Disabilities

We’ve previously posted a roundup of Hawai‘i-based community resources on elder abuse, which can show you where to turn if you are concerned about the well-being of any older person or need to report a problem. In the spirit of that post, we are presenting a new collection of 10 free online resources, which run the gamut of health issues for older people.

We hope you’ll find them as useful and fascinating as we have. We’d also like to send a big thank you to Patricia Sarmiento from the Public Health Corps, who brought many of these resources to our attention.

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1. How to Cope with Sudden Illness or Disability
Disabled World

http://www.disabled-world.com/disability/coping-disability-illness.php

The whole world is upside down and you are in the middle of it believing life will never be the same again with you just being miserable fighting your illness or disability. You might lose your friends because you will no longer be able to socialize as you used to. This is also the time to find out who your real friends are.

 

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2. Top Tips for Getting Fit if You’re Disabled
DisabilityHorizons.com

http://disabilityhorizons.com/2014/11/top-tips-for-getting-fit-if-youre-disabled

Want to get fit but assume using a personal trainer would be out because of your disability? We talk to Dom Thorpe, a personal trainer specialising in helping people with all kinds of disabilities get fit. Read on to see how you can get fit too.

 

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3. Learn About the Different Types of Service Dogs
Anything’s Pawsable

http://www.anythingpawsable.com/types-of-service-dogs

Did you know there are over a dozen different specializations for Service Dogs? Have a look at this article if you’re curious what all these types of Service Dogs are, and what they do.

 

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4. Preparing for Disaster for People with Disabilities and other Special Needs [PDF]
The American Red Cross

http://www.redcross.org/images/MEDIA_CustomProductCatalog/m4240199_A4497.pdf

For the millions of Americans who have physical, medical, sensory or cognitive disabilities, emergencies present a real challenge. The same challenge also applies to the elderly and other special needs populations. Protecting yourself and your family when disaster strikes requires planning ahead. This booklet will help you get started.

 

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5. How to Stay Physically Active
Washington University Healthy Aging & Physical Disability Rehabilitation Research & Training Center

http://agerrtc.washington.edu/info/factsheets/exercise

Exercise is a proven way to improve the health, physical functioning and well-being of older adults who have disabilities. This article has more information about the myriad benefits to regular exercise, as well as helpful advice about how to come up with an exercise plan, get started, and keep up with exercise.

 

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6. Grants for Home Modification: 16 Resources for Homeowners with Disabilities
HomeAdvisor.com

http://www.homeadvisor.com/r/grants-for-home-modification

There are many grants available to disabled persons for home modifications to help better accommodate them. It’s heartening to see how many organizations are making it their mission to provide comfort and safety through these grants. Here is a collection of sixteen of those grants, with a good summary of background information about the American Disabilities and Fair Housing acts.

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7. The Ultimate Guide to Home Accommodations for Persons with Disabilities
Redfin.com

https://www.redfin.com/blog/2016/04/the-ultimate-guide-to-home-accommodations-for-persons-with-disabilities.html

Nearly 57 people in the US live with a disability. Ensuring the places they live provides support and helps them lead happy lives should be a top priority. This guide covers every area of the home with recommendations for how to make the home a fulfilling place where people with disabilities can thrive.

 

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8. Depression and Disability: A Practical Guide [PDF]
The North Carolina Office on Disability & Health

http://fpg.unc.edu/sites/fpg.unc.edu/files/resources/other-resources/NCODH_Depression.pdf

Depression is a serious medical problem that is often misunderstood. Fortunately, effective treatments are available. As one of the most common “secondary conditions” among people with disabilities, recognizing depression and seeking treatment is very important. This free guidebook helps explain what depression is, why it occurs and how it can be treated.

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9. Disability Etiquette
United Spinal Association

http://www.unitedspinal.org/disability-etiquette

This booklet has tips to follow for anyone—with or without a disability—who wants to interact more effectively with people with disabilities.

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10. Violence against Persons with Disabilities
Western Regional Coalition to End Violence

http://www.wrcev.ca/get-the-facts/persons-with-disabilities

Disabled populations are especially likely to be victimized by physical violence, sexual violence, psychological or emotional abuse. Victims seldom report abuse or neglect. This article has information on the factors that make people susceptible to violence, how to recognize signs of abuse or neglect, and how to help someone victimized in these ways.

Adolescence & TBI

Does getting a concussion younger mean the brain heals quicker? Or is it worse for the long-term? In the case of repetitive concussions, how many is too many?

Some argue that youth concussions cause no long-term damage if they are allowed to completely heal. A study published by the Official Journal of the American Academy of Neurology examined 42 former NFL brains between the ages of 40-69 from Diagnosing and Evaluating Traumatic Encephalopathy using Clinical Tests (DETECT) study.

The brains were divided in half based on the date of first exposure to football —two groups consisting of those who started playing football before and after age 12. The findings showed an association between participation in tackle football prior to age 12, greater later-life cognitive impairment measured using objective neuropsychological tests. The test group was small but shows the need to explore the safety recommendations for youth sports. Further studies require a larger sample size and longitudinal designs.

The developmental effects of brain injury on young brains are difficult to study – there are many factors that make it complex to see clear results. This is due to concussions setting off a series of chemical dysfunctions, and chronic cell death. Gaining further knowledge of the neurobiology of concussions and the cellular process will help us see the early clinical symptoms in a new light.

Data concerning the incidence of sports-related concussions in youth will also help understand the scope of the problem. Although the amount of reported concussions has risen, this could be because of better awareness leading to greater recognition of the injury. The Center for Disease Control is setting up a nationwide surveillance system to more accurately determines sports-related concussion in youth ages 5-21. This is part of a $257 million project proposed for the 2016 President’s Budget Request for CDC’s Injury Prevention and Control.

Because there are between 30 million to 45 million youths participating in sports , understanding the impact of concussions on younger brains is becoming a pressing area of research and awareness. In a poll conducted by HBO Real Sports and Marist College, 14% of U.S. adults have heard nothing about football and long-term brain injury though nearly 7 in 10 talk about the sport and follow it closely. More research around the topic of sports-related concussions will hopefully lead to positive changes to the game and improved safety guidelines.

Gender & TBI

Gender & TBI

Scientists are researching the differences between male and female brains. Data shows surprising differences in how they receive and respond to injury.

If there were two brains on a medical table, it would be easy to mistake a woman’s brain for a man’s. Although similarly built, subtle differences in processing, chemistry, structure, and cultural conditions make mTBI experiences unique for each gender. Studies focused on risk factors for sports-related concussions use reported mTBI incidents in youth and high school sports to analyze patterns. Yet a review of existing studies still demonstrates there is a need for larger sample sizes, finer metrics for risk exposure and prospective cohort studies.

In sports such as American football or high school lacrosse, males were found to be at greater risk when compared to female athletes, particularly at the junior high level. This does not necessarily mean males suffer more brain injuries in sports—female athletes were at greater injury risk in basketball and soccer, with risk increasing during high school. There is also a bias to consider, as culturally men play sports with more physical contact.

In sports with similar rules, female athletes sustain more concussions than male counterparts. Additionally, female athletes generally report a higher number and severity of symptoms as well as a longer duration of recovery than male athletes.

Female soccer players are 1.5 to 2.5 times more likely to receive a mTBI as compared to males, while female basketball players have a 1.5 to 3 times more likelihood. While playing soccer, females were found to increase head acceleration during impacts compared to males, showing decreased neck strength and effective head mass.

One reason female populations show a higher rate of concussions and symptoms could be because girls and women are more likely to self-report their concussions when they’re injured and follow up. Regardless, studies show both male and female populations tend not to report concussions when they occur in sports.

The Gary Galiher Law Hour — Episode 14: Protecting Elders in Long-Term Care w/ John McDermott

We’ve talked before about the importance of being an advocate for your loved one, due to the limited resources our state has to perform certain functions. We’re honored to have the state’s Long-Term Care Ombudsman, John McDermott, here with us to talk more about what his office does to prevent abuse. But what is an ombudsman?

In John’s words, an “ombudsman is really someone who is working behind the scenes so that you don’t get the runaround, so that if you have a complaint, this person can tell you where to go, or will go there to find out for you.” The Long-Term Care Ombudsman Program’s home page is online and at your service at the link.

Elder-care facilities have to follow certain best practices, and John’s office serves to intervene when they fail in these duties.

In a perfect world, this kind of watchdog would not be necessary. Attorney Anthony Carr, our guest host this episode, raises an excellent point:

We want to be objective, and we want to be transparent. At least in theory that’s true, but what are our priorities as a society? Well, it’s a priority to make sure that employees are going to do their duties as expected, it’s a priority to make sure that unsafe food is not given to consumers. But it is not a significant priority so far, as much as we might want to think it is and talk about it, to recognize the health and wellbeing of elderly folks as a priority we need to do something about and dedicate resources to, and not just talk about.

The perfect counter-example is John and his office, an incredible force for these values that society has yet to honestly embrace. They work hard to stem the tide of elder abuse, neglect, and exploitation, in spite of the broad lack of urgency regarding these issues. Their hearts are in it, and they do it for the right reasons.

Click play and learn about the current situation in Hawai‘i, as well as the efforts underway to make it a safer, more dignified place for people to spend their golden years. You can also read about John in the Civil Beat’s recent article, “Did Hawai‘i Lawmakers Do Enough To Protect The Elderly?

Hawai‘i Elder Abuse Community Resources

Community Resources and advocacy groups are helping us make the world a safer place for our athletes.

State of Hawai‘i Neurotrauma Support

http://health.hawaii.gov/nt/

Neurotrauma Support develops, implements, and monitors a comprehensive system of statewide supports to address the needs of people with neurotrauma injury and their families.

Brain Injury Association Hawai‘i

http://www.biausa.org/hawaii/

Brain Injury Association of Hawaiʽi is a non-profit 501(C)3 agency dedicated to serving those affected by brain injury through advocacy, education, prevention, and support.

Hawai‘i Concussion Awareness Management Program

http://hawaiiconcussion.com

Hawaiʽi Concussion Awareness and Management Program (HCAMP) is an organization intended to provide Hawai‘i’s physically active community and medical community with evidence based research education, support and resources to manage concussions.

Hawai‘i Pacific Neuroscience

http://www.hawaiineuroscience.com

Hawai‘i’s first fully integrated multidisciplinary neuroscience specialists working in a patient centered care model. Hawaiʽi Pacific Neuroscience employs the latest and most advanced diagnostic capabilities to solve and diagnose complex neurological conditions. HPN also leads the state in bringing neuroscience clinical trials to the islands so Hawaiʽi patients do not have to travel to the mainland to seek advance treatments.

League of Denial

http://tinyurl.com/leagueofdenial

A portal to information from the feature documentary and investigative non-fiction book by Steve and Mark Fainaru. The League of Denial details the history of the NFL brain injury fraud and the scientists on either side of the story.