“The House” at the International Mesothelioma Program (IMP)

The housing options offered to mesothelioma patients is one of the most helpful avenues of support provided by the International Mesothelioma Program (IMP) at Brigham and Women’s Hospital in Boston.

Being diagnosed with mesothelioma is overwhelming enough, but worrying about where to seek treatment and where to stay while undergoing treatment only add to the stress these patients face.  Treatments can last weeks sometimes months and hotel bills can get very costly.  The IMP has made it a part of its mission to provide a solution to this problem for its patients.

“The House”

Across the street from Brigham and Women’s Hospital in Boston, Massachusetts is a triple decker house located at 48 Francis Street. Mesothelioma patients and their families commonly refer to it as “The House.”  The House which is owned by the hospital opened its doors in 2008.  The families of mesothelioma patients who are undergoing treatment can stay at the House for a small per night donation.

The House has three floors. The second and third floors can accommodate up to three families; the first floor up to two families.  The families share a comfortable living room, fully equipped kitchen, and back deck area.  Each family has their own fully furnished private bedroom.  Having the shared living spaces provides families with an area where they can congregate at the end of the day to share stories, talk or just silently support one another.

One of my clients who received his mesothelioma treatment at the IMP stayed at the House for three weeks during his surgery, treatment, and recovery.  He and his wife described the House as “their home away from home.”  They found the House to be very comfortable and convenient.  My client’s wife especially appreciated being able to get together with the other wives at the end of a long day.

I had the pleasure of visiting the House a number of times.  I was very impressed.  The House is a beautiful home for patients and their families who have to travel from far away for treatment.

Support System for Families and Patients

While staying at the House, families and patients have a chance to connect with others who are going through the same experiences and emotions.  Families and patients provide one another with support, encouragement, hope and comfort.

Families have the opportunity to gather at the end of the day, eat meals together, share stories or just relax.  My client and his wife became very close with the families with whom they shared the House.

Mesothelioma is a unique cancer and treatment can be strenuous.  Being surrounded by people who can relate to their experiences provides a special kind of support that patients and their families cannot find elsewhere.

The team members of the IMP are also a part of the support offered at the House.  Doctors, nurses, chaplains, social workers, and counselors are always available to cross Francis Street and tend to the needs of their patients and loved ones.

Not Just a House

The House at the IMP is not simply a house but it is a home, shelter and haven for mesothelioma patients and their families.  The House provides care, support and respite for patients and their caregivers.

For reservations, contact social worker Charlene Haouiliya at (617) 732-5500, ext. 32819.

International Mesothelioma Program (IMP) Patient Matching Program

Over the 30 years that I have represented mesothelioma clients, I have seen many advancements in the field of mesothelioma.  The treatment and care of today’s patients is much more focused on the whole patient not just the disease.  The International Mesothelioma Program (IMP) at Brigham and Women’s Hospital in Boston is one of the outstanding facilities that is in the forefront in its approach to treating the entire patient both physically and mentally.  The IMP provides comforting support for patients in many different ways, from offering social workers’ guidance to organizing support groups to developing its “Patient Matching” program.

“Patient Matching” Program at the International Mesothelioma Program

The “Patient Matching” Program connects current patients at the IMP with mesothelioma patients who are about to undergo similar treatment and experiences.  The program was designed to offer perspective and hope to patients who recently received a devastating diagnosis of mesothelioma.  Receiving such a diagnosis can leave a person with many frightening questions.  The “Patient Matching” program at the IMP is created to comfort patients through hearing information directly from someone who has been in their shoes.

I have seen the benefits of patient matching firsthand through the eyes of two of my clients who were connected through this program.  One client was just finishing his treatment at the IMP and my other client had just received the debilitating diagnosis of mesothelioma and was at the IMP for his first treatment.  They found a kinship and bond in sharing their stories and advice about their diseases.  My client who was recently diagnosed was reassured by his new found friend’s encouragement and explanations of the treatment he received at the IMP.

Dr. David Sugarbaker, Founder, Director and Chief of Thoracic Surgery of the International Mesothelioma Program, understands the devastating emotional effects this disease has on patients and their families.  Dr. Sugarbaker, explains ”  Mesothelioma takes an emotional toll on patients and their families that cannot be underestimated; it can be nearly as significant as the disease itself.”  The IMP has developed many programs including the “Patient Matching Program” to help deal with these emotional issues.

 

I firmly believe that a positive outlook and support can help one fight a devastating disease such as mesothelioma.  A healthy mental state is just as important as a strong physical state.  I have seen many of clients thrive due to emotional support they have received during their treatment.  The Patient Matching Program at the IMP provides patients with great encouragement and much needed support.  The IMP goes above and beyond to ensure every aspect of the mesothelioma patient is tended to.