Keep the Money Follows the Person Program Alive!

savethemfp

The Money Follows the Person Grant program has helped more than 50,000 people move out of assisted living and nursing home institutions, back into their communities of choice. The program gives people the right to decide where they live and receive home and community services and supports.

Nearly half of the people who gained this new freedom were seniors. The rest were struggling with physical or developmental/intellectual disabilities, or mental illnesses—people most in need of the kind of support the MFP program provides.

Moving out of institutional care not only gives participants a renewed sense of independence and belonging: it saves the state and federal government (and, therefore, the taxpayer) money, because providing services costs less in the community and outside of dedicated care facilities.

That’s why we all win with the MFP program, and why it has broad bi-partisan support. Yet, without action in Congress to renew, it will be discontinued at the end of September, 2016.

If you would like to help, click the banner above and tell your members of Congress to continue the MFP Program. It takes about a minute.

How to Prevent Wrong Mental Illness Diagnoses in Assisted Living

Antipsychotic drugs are harmful if you do not need them. They make life more difficult for people with dementia who take these drugs unnecessarily. Side effects include increased anxiety, restlessness, loss of hunger or thirst, excessive sleeping and even death.

It is important to ask about the drugs taken by you (or by a loved one) in assisted living. Ask: Were you diagnosed with schizophrenia after moving into your care facility? Were you told you need drugs to treat symptoms of schizophrenia or another serious persistent mental illness?

Dementia is not a chronic mental illness like schizophrenia.

If you or someone you know has dementia and were told you (or they) have schizophrenia, it may have been the wrong diagnosis. If you think this is the case, your Long-Term Care Ombudsman can help you understand your rights and talk to your nursing staff.

Questions to ask include:
  1. Why was I given this diagnosis?
  2. What are my symptoms?
  3. Who made this decision?
  4. Am I on an antipsychotic drug?
  5. Are there other treatments that don’t involve drugs?
  6. What are the risks with the drugs you want me to take?
  7. Who will monitor my symptoms?

A correct first-time diagnosis of schizophrenia is extremely rare for people of old age. Its symptoms can appear to be similar to those of dementia, but the two illnesses are very different.

A psychiatrist is the best professional to diagnose schizophrenia. People have the right to ask for a psychiatrist to evaluate them.

Doctors recommend drug-free approaches as the current best treatments for dementia. If you have the wrong diagnosis, you could be given harmful drugs you don’t need.

Sources: National Inst. of Mental Health, Center for Medicare Advocacy, National Consumer Voice for Quality Long-Term Care, Centers for Medicare & Medicaid Services.